I have seizures every single day (not always grand mals), but it’s been all my life from xanx abuse while I was still in the womb, and i still get terrified if I feel and know im gonna have one…. I can still see everything and am aware for the first 5 seconds of mine and what I see and feel is horrific… ———>!!MOST IMPORTANT THING TO DO when you feel like you might have a grand mal, Breath at a steady rate with a big breath in, hold for 2 seconds, and bigger breath out…. Lots of times people will freak themselves out and put themselves into a grandmal seizure. I used to all the time till I learned how to breath and keep breathing till my heart rate is down. My girlfriend stays in the one w me and tells me to breathe. Everyone hang in their. We got this
Very educational actually, I knew a few things about seizures but the way you described it by your POV was informative thank you and wishing you both the best!
I’ve had the same issues as you…especially as an adult. Drinking and not enough sleep is a big factor. I’ve had 48 Grand mals since the age of twelve. I’ve been seizure free since 2006.
Back in middle school I had my first one an I'm not afraid to admit it I was really scared so was my father I'm 20 an I still remember it like it was yesterday that's how traumatizing it was for me if anyone know how to prevent it from happening again please let me know
any updates? I had my first grand mal 4 weeks ago. Short term memory problems though! I am working from home…since we where doing every other day Because of Covid. 2 month til I get my license back…
One thing. You are married to the man. I'm sure that his having a seizure frightened you. It does most people. However, you should understand that while you were there and helping him through the seizure, the seizure happened to your husband, not to you. So, it would be nice if you would allow your husband to get a word in edgewise about how the seizure affected him. Granted, he was unconscious for most of the seizure and therefore, he won't be able to describe the seizure itself, and what happened to his body and how the seizure manifested itself. You can tell us what happened with your husband and he should be there to be able to talk about how he felt. Both before the seizure, if he can remember that, and certainly, after the seizure, how he felt physically and even emotionally, what did he feel or think about when he woke up. He is sitting right there, next to you, and every time he attempts to say something about the seizure, you shut him down. I'm a chatterbox also. Having epilepsy myself, I can only imagine how the seizure frightened you. I don't blame you for still being a little bit "wired" However, it's 4:26 out of 25:00 and I don't want to watch the rest of the video, if your husband is not going tobe able to talk about his seizure . He needs to be able to do that. Both of you are helping others, who are in the same boat as you are. However, if your husband can speak to we patients who have epilepsy, it would be extremely helpful for us to hear from him, whatever he wants to share with us, and, whatever he is able to share with us. We may not have the same type of seizure. However, it is the feelings about having a seizure that most of us would be interested in. Because, we also have had feelings about seizures, and it is not easy for many people to have a seizure happen, and all the medical people are interested in, is if the seizure is over. Emotional First Aid is also needed. Perhaps, even more than the physical First Aid. However, it is given short shrift. And it's my belief, that if we don't have any opportunity to talk to another person who has epilepsy/seizures, that can allow bad feelings about the disability itself, and perhaps ourselves, to arise, and maybe fester. The opportunity to hear from otherswho have epilepsy and have seizures, is ta rare gift. A gift to help lessen those feelings and allow them to dissappaite. Thank You for posting this.
I sometimes get something like this, in a much more minor form, If i drink heavily, and not get proper sleep….I sometimes TWITCH, like a jolt of electrify went though my body, literally I will jump off the bed, but then that RELEASE ends it for me…
how many drops of cbd oil does he take a day? my husband just had a seizure today… got an RX for KEPPRA.. after reading about it I am really frightened for him to take it.
Hi guys! First I’d like to say E-A-G-L-E-S EAGLES. I married a man from bucks co. PA a very huge eagles fan and I can’t wait to show him your video. I want to thank you for sharing your experience. You made me tear up when you spoke about what you witnessed during your husbands seizure and how scared you were. My husband and 3 year old witnessed my 1st seizure ever last week Wednesday feb 13th. We live in FL so I didn’t lose my drivers but Doctors don’t want me to drive for 6 months. I have started taking prescription keppra which has those nasty side effects. I will be looking into cbdoil as well thanks for the info. I had the 1st seizure at home, hubs called 911, then I had another seizure at the hospital. I bit my tongue really bad. MRI and EEG came back normal. Hoping to get into the neurologist soon, cause they can okay me driving prior to the 6 month mark. I’m on the wait list cause they are out til May!!! Hope you are both well. Take care.
How is your husband doing with the CBD oil and his seizures?
I have seizures every single day (not always grand mals), but it’s been all my life from xanx abuse while I was still in the womb, and i still get terrified if I feel and know im gonna have one…. I can still see everything and am aware for the first 5 seconds of mine and what I see and feel is horrific… ———>!!MOST IMPORTANT THING TO DO when you feel like you might have a grand mal, Breath at a steady rate with a big breath in, hold for 2 seconds, and bigger breath out…. Lots of times people will freak themselves out and put themselves into a grandmal seizure. I used to all the time till I learned how to breath and keep breathing till my heart rate is down. My girlfriend stays in the one w me and tells me to breathe. Everyone hang in their. We got this
Very educational actually, I knew a few things about seizures but the way you described it by your POV was informative thank you and wishing you both the best!
I’ve had the same issues as you…especially as an adult. Drinking and not enough sleep is a big factor. I’ve had 48 Grand mals since the age of twelve. I’ve been seizure free since 2006.
Back in middle school I had my first one an I'm not afraid to admit it I was really scared so was my father I'm 20 an I still remember it like it was yesterday that's how traumatizing it was for me if anyone know how to prevent it from happening again please let me know
any updates? I had my first grand mal 4 weeks ago. Short term memory problems though! I am working from home…since we where doing every other day Because of Covid. 2 month til I get my license back…
I’m 22 now
I got diagnosed at 4
I also have epilepsy I get grand mals also there terrible
One thing. You are married to the man. I'm sure that his having a seizure frightened you. It does most people. However, you should understand that while you were there and helping him through the seizure, the seizure happened to your husband, not to you. So, it would be nice if you would allow your husband to get a word in edgewise about how the seizure affected him. Granted, he was unconscious for most of the seizure and therefore, he won't be able to describe the seizure itself, and what happened to his body and how the seizure manifested itself. You can tell us what happened with your husband and he should be there to be able to talk about how he felt. Both before the seizure, if he can remember that, and certainly, after the seizure, how he felt physically and even emotionally, what did he feel or think about when he woke up. He is sitting right there, next to you, and every time he attempts to say something about the seizure, you shut him down. I'm a chatterbox also. Having epilepsy myself, I can only imagine how the seizure frightened you. I don't blame you for still being a little bit "wired" However, it's 4:26 out of 25:00 and I don't want to watch the rest of the video, if your husband is not going tobe able to talk about his seizure . He needs to be able to do that. Both of you are helping others, who are in the same boat as you are. However, if your husband can speak to we patients who have epilepsy, it would be extremely helpful for us to hear from him, whatever he wants to share with us, and, whatever he is able to share with us. We may not have the same type of seizure. However, it is the feelings about having a seizure that most of us would be interested in. Because, we also have had feelings about seizures, and it is not easy for many people to have a seizure happen, and all the medical people are interested in, is if the seizure is over. Emotional First Aid is also needed. Perhaps, even more than the physical First Aid. However, it is given short shrift. And it's my belief, that if we don't have any opportunity to talk to another person who has epilepsy/seizures, that can allow bad feelings about the disability itself, and perhaps ourselves, to arise, and maybe fester. The opportunity to hear from otherswho have epilepsy and have seizures, is ta rare gift. A gift to help lessen those feelings and allow them to dissappaite. Thank You for posting this.
Danke für den Tipp…ich werde es probieren!!! Ihr seid klasse…
I twitch before I go and my husband uses the lights on no ones home to describe me before and after
I sometimes get something like this, in a much more minor form, If i drink heavily, and not get proper sleep….I sometimes TWITCH, like a jolt of electrify went though my body, literally I will jump off the bed, but then that RELEASE ends it for me…
Dam I go threw this I beat up my tongue bad every time
how many drops of cbd oil does he take a day? my husband just had a seizure today… got an RX for KEPPRA.. after reading about it I am really frightened for him to take it.
Hi guys! First I’d like to say E-A-G-L-E-S EAGLES. I married a man from bucks co. PA a very huge eagles fan and I can’t wait to show him your video. I want to thank you for sharing your experience. You made me tear up when you spoke about what you witnessed during your husbands seizure and how scared you were.
My husband and 3 year old witnessed my 1st seizure ever last week Wednesday feb 13th. We live in FL so I didn’t lose my drivers but Doctors don’t want me to drive for 6 months. I have started taking prescription keppra which has those nasty side effects. I will be looking into cbdoil as well thanks for the info. I had the 1st seizure at home, hubs called 911, then I had another seizure at the hospital. I bit my tongue really bad. MRI and EEG came back normal. Hoping to get into the neurologist soon, cause they can okay me driving prior to the 6 month mark. I’m on the wait list cause they are out til May!!! Hope you are both well. Take care.
i've only had grand mal my last one approx a month ago and went to the hospital once again, docs had to tweak my meds once again
Hydrate Hydrate Hydrate! I'm Hydrating always. Thank God for you Brie! Give us an update in a month or so. Love you guys!